GRAND JUNCTION, Colo. (KKCO) - It’s a rare genetic disorder that affects one in every 100,000 children. It’s called Hurler's Syndrome and many children who have it only live five to 10 years.

On the outside, two and a half year old Torie Brady acts just like any other child, but inside she's fighting against a deadly disease called Hurler's Syndrome. Torie’s mother Lexie Moscrip says, "She does have this horrible, horrible thing going on inside her body but at the same time she's just so happy and upbeat and positive."

Moscrip found out her daughter had the disease just over two months ago. "The whole world kinda crashed and fell apart,” says Moscrip. “I spent the first few weeks just crying, in an absolute mess."

Hurler’s Syndrome stops the body from breaking down cellular waste causing organ damage and other problems and since it's so rare it's not screened for at birth.

Cheryl Moscrip, Torie’s grandmother says, "Time is ticking away from us, if we would have known two and a half years ago we could have had transplants done sooner." Grandma Moscrip, says an enlarged liver, heart valve problems and bone and joint troubles are just some of the problems affecting Torie's small body and if they don't do something soon it will lead to severe retardation.

Torie's only hope is to get a bone marrow or stem cell transplant. Grandma Moscrip says, "And that's our goal, we want to keep those brains, she's just funny and sweet and nice and smart."

But with an 85 percent success rate the surgery does have its risks. "Probably the most unfair thing that there can ever be is for a parent to outlive their child," says Grandma Moscrip.

And there's no guarantee the $750,000 transplant will be covered by insurance. "I don't know what we would do without her; all we want to see is her grow and thrive and enjoy life," says Grandma Moscrip.

So while Torie's mom and grandma wait and hope for the best she'll continue being the bright and bubbly two year old that puts a smile on everyone's face.

This Sunday the Moscrip's will hold a chili cook off contest to raise funds for Torie's transplant. The event takes place at the Grand Junction VFW, located at 1404 Ute Ave., at 1 p.m. Sunday, Nov. 15.

Enter your own chili recipe for a chance to win cash prizes. The minimum to enter your own chili pot is $25. There’s a cash prize for first place. Or show up to eat and judge for only $5.

For questions or to RSVP send an email to dollars4torie@hotmail.com.

Donations can be made to: Torie Brady Medical Fund, Grand Valley Bank, 452 S. Maple Street, P.O Box 250, Fruita, Co 81521.