GRAND JUNCTION, Colo. (KKCO) - Adlai Lemus looks like a happy, healthy little boy, and for the most part, he is. He turns one next week, and loves spending time with his family, including his two older brothers.
The one thing that sets Adlai apart, though, is that he suffers from a rare disease that causes a narrowing of the trachea. The disease is so rare it only affects one child in nearly a quarter of a million.
Once diagnosed, doctors recommended that Adlai receive surgery to widen his trachea. Without it, doctors fear he may not make it through next winter.
In addition to the danger the surgery poses, it also is going to cost their family a small fortune around $60,000.
Adlai's mother, Caroline Lopez, says Adlai's the impending surgery weighs on her, but that for their kids sake she tries to stay strong.
"I'm just worried that he's not going to make it," says Lopez, "or somethings going to happen to him on the table. There's just so much you know. I just don't want to do it but we don't have a choice"
For more information on Adlai's condition and to donate to their cause, visit: