Rare Disease Day

Published: Feb. 23, 2021 at 8:23 AM MST
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GRAND JUNCTION, Colo. (KKCO) - Saphire Cervantes visited with Nick Kirchhof, the Colorado Rare Action Network’s ambassador, to talk about its upcoming Rare Disease Day Event.

Rare Action Network’s mission is to connect and empower a network of individuals and organizations with the resources and training needed to become effective advocates for rare diseases through national and state-based initiatives across the United States.

The Colorado Rare Action Network is inviting the public to join patients, families, caregivers, and other rare disease community members to a virtual event that provides insight into challenges faced by rare disease patients and their families. The virtual event is on Feb. 24 from 12 p.m. to 1:30 p.m.

If you would like to sign up for this event, you can fill out the form linked below.

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